Addison's Disease Self-Help Group

The Addison's Disease Self-Help Group is a voluntary group run by and for people with adrenal insufficiency. The group aims to share information and experiences that will help people to manage their condition and work well with their doctors.

Allergy UK

Allergy UK provides information, advice and support for people with allergy including details of the nearest NHS Allergy clinic. The Seal of Approval, Consumer Award and 'Free From' schemes have been introduced to help consumers to find suitable products for use as part of their allergy management programmme.

Alzheimer's Society

The Alzheimer's Society is the leading care and research charity for people with dementia and their carers. It provides information and education, support for carers, and quality day and home care. It funds medical and scientific research and campaigns for improved health and social services and greater public understanding of dementia.

Arrhythmia Alliance: The Heart Rhythm Charity

Promoting better understanding, diagnosis, treatment and quality of life for individuals with Cardiac Arrhythmia.

Association for Multiple Endocrine Neoplasia Disorders

AMEND offers support for all those affected by this rare genetic disorder. MEN 1 & 2 patients and carers can gain support from speaking to their Tele-Buddies who are patients and carers themselves. Members receive regular newsletters and updates on issues and research pertinent to this condition.

Cardiomyopathy Association

The Cardiomyopathy Association is a medical welfare charity whose aim is to support potential and diagnosed sufferers by providing direct help through helplines, printed, video and CD materials. Additionally, the Association promotes research and raises public and government awareness of the disease.

Desang Kitbags for Diabetic people

Desang Ltd, a new company that designs and sells kitbags for people with diabetes - estimated at 2 million people in the UK today. The kitbags keep everything in one place, making living with the condition just that little bit easier. The kitbags are made of robust leather and fit the best-selling blood test meters in the UK along with lancets, calibration strips or liquids and spare sensors, plus spare needles and cartridges for insulin pens. Syringes and insulin bottles also fit in.

Disabled Living Foundation

The DLF aims to enhance opportunities for people with disabilities and older people to lead productive and independent lives. The DLF responds to nearly 30,000 requests for information a year; providing advice on equipment and technological solutions for independent living.

Education for health

Education for Health is a powerful merger of two of the UK’s leading education institutions for health professionals: the National Respiratory Training Centre (NRTC) and Heartsave It aims to provide a consistent, comprehensive and innovative approach to professional health training across the fields of cardiovascular disease and respiratory health, with the ultimate objective of transforming lives worldwide.

Epilepsy Action

Epilepsy Action's website provides information about coping with epilepsy, seizures and convulsions. The site deals with the various types of epilepsy and provides free help and advice through the use of its email and telephone helplines.

Foods Matter

Foods Matter is a monthly support magazine for anyone
suffering from a food allergy/intolerance or living on a restricted
diet, whatever the cause.

Foundation of Nursing Studies

The Foundation of Nursing Studies (FoNS) supports nurses, midwives and health visitors in developing and sharing new ways of working to improve patient care. FoNS is free to join and welcomes all healthcare professionals. Join at www.fons.org/fonsform.htm or Tel: 020 7233 5750

Haemophilia Society

The Haemophilia Society provides information, advice and support services relevant to people with haemophilia, von Willebrand’s and related disorders, and advocate and campaign to secure the best possible care and treatment.

Health Directory UK

Health and medical directory and information on the web.

Juvenile Diabetes Research Foundation

The Juvenile Diabetes Research Foundation (JDRF) is dedicated to finding a cure for diabetes and its complications through research. Founded by the parents of children with diabetes and still led by people living with diabetes, JDRF now funds more diabetes research than any other voluntary organisation in the world.

The National Respiratory Training Centre

The National Respiratory Training Centre is an impartial education and research establishment for health professionals which aims to improve the care of patients who suffer from respiratory or allergic disease. Educational programmes are run nationally and internationally and are accredited by the Open University.

ME Association

The Myalgic Encephalopathy Association is a national registered charity providing information and support to people with ME, their families and carers. The Association also commissions and funds scientific research, to increase understanding of the condition.

Men's Health Forum

Malehealth - www.malehealth.org.uk - fast, free independent health information for men of all ages from the Men's Health Forum. Described
by the Daily Telegraph as 'the most comprehensive source of information about men's health matters on the web', it was recently Highly Commended in the BMA's 2003 Patient Information Awards.

National Association for Patient Participation

The N.A.P.P. supports the introduction and networking of patient participation groups in general practice. Staffed entirely by volunteers, N.A.P.P. is an apolitical charity partly funded by the Department of Health. Enquiries from NHS organisations, GP practices and patients are welcomed.

National Society For Epilepsy

The NSE is the largest medical charity in the field in the UK. It provides information and support to people affected by epilepsy; carries out research into epilepsy; and cares for people with epilepsy through medical, residential and rehabilitation services.

PiXiE

PseudoXanthoma Elasticum is a hereditary skin disease affecting elasticity in the skin, eyes and heart as they become calcified. 60% of PXE sufferers lose central vision but do not go blind. PiXiE provides information and support to sufferers.

STARS

STARS works together with individuals, families and medical professionals to offer support and information on Syncopes and Reflex Anoxic Seizures.

StudentHealth.co.uk

StudentHealth.co.uk is a free health resource aimed specifically at student health matters. Written by NHS GPs based at the University of Sussex it offers over 250 printable advice leaflets on topical and student related issues. There are also links to university health centres and support groups.

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